Friday, February 6, 2009
Bad News
So, we went for another hearing test (ABR) yesterday and learned that Alex has lost more hearing. He now has a profound hearing loss. I feel like the rug has been swept out from under me again. First of all, we understood that his hearing loss due to the connexin 26 was supposed to be stable, but now they say there are always exceptions. I do not like that Alex is an exception. Anyway, we are now crossing our fingers that Alex can have bilateral cochlear implants--the sooner the better. We'll start saving our money, and we're thrilled that our insurance will help a lot. Right now I can hear Alex and Spencer laughing together in the other room. Alex is a very cute baby, and he'll soon be a cute baby with a lot of expensive hardware on his head.
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4 comments:
I found your blog through google. Good luck on your "hearing journey"- our little guy only has a moderate loss but we've met a lot of kids who have more severe losses and cochlear implants, and are doing great! Have you found the John Tracy Clinic online yet? They send free AVT course material to your house- we found it to be a great supplement to our regular speech therapist.
I'm sorry to hear about Alex's loss of hearing. We are thinking of you and we hope the implants will work for him! Hope you're doing ok. Love!
Great blog! I hope you'll consider adding it to the aggregator at Deaf Village (www.deafvillage.com) -- we'd love to have you as part of our community!
Great blog! I hope you'll consider adding it to the aggregator at Deaf Village (www.deafvillage.com) -- we'd love to have you as part of our community!
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